I know I am not getting all these hits today because you guys are checking my blog to find out what your employees in the Government are doing today. (Frankly I would have to report not much). I always have a huge spike when it is a big day for Julie and Brendan. I was hoping they would get to post something soon, but frankly, I think they are just tired!
I spoke to Julie today and she sounds good, exhausted but good. Frankly I am amazed it took this long to wear Julie out. She has 10,000 times more pep then anyone I know.
Anyway, todays results were not bad. They were not what we truly wanted (complete healing), but they were not bad. I think not bad is pretty good. The scans did show some growth of the tumors in her body, however, the Dr. was not able to conclude that the fotomustaine was not working. In fact, he thought we ought to try it again. Julie is going to do another round of the Switzerland treatment (that Brendan brought home) and they plan to combine it with some other drug. Although her scan did reveal some growth of the tumors, they are still optimistic that the fotomustain can help.
But before we can start this treatment, we need to bring her platelets up. Her platelets are low, (which we expected with the Fotomustain (sp??) treatment), which is why she has been so exhausted lately. She is getting a blood transfusion today and tomorrow. As she said, it will give her some “pep”. She did say that she wouldn’t be running any half marathons anytime soon. (And I got the feeling she was genuinely disappointed not to be running a half marathon!).
Hopefully they will post something a bit more eloquent than this sometime soon, but I know they are exhausted. All we can do is keep up what we have been doing: offering love, hope, support and prayer.